The Willis family packed up and headed West on Saturday, May 17th for our semi-annual check up of the twins at Cincinnati Childrens Hospital. All the news was very positive. Both boys have remained on the growth chart which is good news considering their daily regime includes a fairly powerful steroid. Respiratory and cardiac function remains normal and their dexterity and muscle mass is very good. A Dexa scan has revealed some bone loss which we may have to address with yet another medication. Alison is currently researching our options to see what the appropriate action is. All three of the boys were troopers, remaining civil through almost 6 hours of MRI’s and countless tests, not to mention the ten hour ride to and froe. The monotony was broken up by a family trip to “All American Stadium” to witness the Cincinnati Reds take on and beat the Cleveland Indians. It was the boy’s 1st Major League Baseball game and they got to watch 2 double plays and a home run which was capped off with fireworks. Jack almost fell out of Mom’s lap as a result of all the excitement.
Our next trip won’t be until Spring of ‘09 as a result of all the positive finding of this trip. Thank you all for your continued thoughts and prayers.
Continued Smiles,
Matt