Alison, Nolan, and Jack got some face time with Repesentative Daniel Maffei to discuss issues facing Duchenne boys and their day to day struggles. The discussion included school and accessabilty issues as well as their upcoming trip to D.C. in February with PPMD. The cordial and concerned Maffei was very appreciative of our efforts and stressed his hopes for continued support through his office.
We’ll see you in February, Representative Maffei.
Continued smiles,
Matt